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Those affected often experience severe developmental delays, brain anomalies, low muscle tone, vision/mobility impairment, gastrointestinal issues, poor/absent speech, and seizures.
If you prefer to donate by check, please make it out to "ReNU Syndrome United" and contact us at renusyndromeunited@gmail.com to request the mailing address.
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ReNU Syndrome United is a registered 501(c)(3) charity