Please visit our full website at https://www.dylans6pdreamteam.com/ for more information.
Dylan’s Rare Chromosome Dream Team Inc. is a tax-exempt charitable organization under Section 501 (c) (3) of the Internal Revenue Code. We are raising funds to both further the research of and increase awareness of Rare Chromosome and Gene Disorders.
This organization was started on behalf of Dylan Nikol. Dylan, who turned 3 in October, has a rare chromosome disorder called 6p duplication (or partial trisomy 6). Essentially instead of having 2 copies of chromosome 6, he has 2.5 copies. There's only about 50 reported cases of this, and probably only a handful of his exact duplication. Since it's so rare, there's very little out there in the literature, and a lot is unknown. At this point, he has some motor and speech delays, but overall he’s doing great with the help of Physical Therapy, Speech Therapy, and Occupational Therapy. He’s making progress everyday, and as we have learned, he just goes at his own pace.
Thank you to everyone that has supported us thus far and helped to make our 1st annual fundraiser so incredibly successful!
We will be hosting our 2nd annual fundraiser event on Thursday, June 19, 2025 at the Piermont in Babylon, NY. Ticket sales will open in early 2025. Stay tuned for more details.
Any size donation makes an impact, and we greatly appreciate your support!
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