The SPATA Foundation is dedicated to advocating, educating, and driving research for SPATA5 and SPATA5L1 Related Disorders, rare genetic disorders characterized by epilepsy, hearing loss, and global developmental and intellectual delay.

In a year of such advanced technology, we know the science exists to create a cure, we just need the funding for it.

Our primary focus of 2024 has been a $90,000 investment towards drug discovery via drug repurposing. Thanks to our generous donors, we were able to make that happen. 

We would love to continue to raise money to go towards clinical trials, creating cell lines, funding our researchers, funding a conference, and additional research towards a cure.

Even just $1 will get us closer to our goal: a cure for our children.

Can you help us?