At BFLS Inc, we are dedicated to advancing research for this incredibly rare but devastating condition, <span fr-original-style="color: rgb(0, 0, 0); font-family: Roboto; font-size: 14px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: normal; background-color: rgb(255, 255, 255); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial; float: none; display: inline !important;" style="color:rgb(0, 0, 0);font-family:Roboto;font-size:14px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;background-color:rgb(255, 255, 255);text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;float:none;display:inline !important;box-sizing:inherit">Börjeson-Forssman-Lehmann Syndrome (BFLS). Every person battling this diagnosis faces unique challenges. And so often, because of the lack of understanding, insufficient awareness, and limited treatments, they are not living their lives to the fullest potential despite their and their families’ best efforts.We as a nonprofit want to strengthen our relationships with families to join forces and grow as an organization to further research for this genetic condition. Along with our fundraising initiatives, we are actively recruiting BFLS patients and their families to participate in our Natural History Survey to describe their experiences with BFLS. Every contribution of knowledge a family makes about living with BFLS helps to guide our research in the right direction. By starting a fundraising campaign in your local community or workplace to rally support and raise funds, you help bring awareness to this rare disease and the urgent need for research in this field. Your donation can pave the way for groundbreaking research initiatives and innovative treatments that have the potential to transform lives.Together, we can make a difference. Your involvement is crucial in our journey towards a future where no BFLS patient or their family has to live without hope for a better future. To learn more about our organization and other ways you can help, visit us at <a style="color:inherit;text-decoration:inherit;user-select:auto;box-sizing:inherit">www.bflsinc.com</a>.  Thanks,Kearstyn ShawFounder & President | BFLS Inc.

Hello <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name, Thank you from the bottom of our hearts for supporting our cause. This donation greatly helps our mission of advancing research for this rare genetic condition and helping patients and their families have access to therapy and treatment options to improve their quality of life.  If you would like to contribute further to our cause, contact us to become a volunteer, or spread the word about our mission! Kearstyn Shaw bflsincorporated@gmail.com

Hello <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name, Thank you from the bottom of our hearts for registering to fundraise for our cause. Your efforts will make a significant impact, and we are excited to have you as part of our fundraising team. 👏  💡 Here are some tips for sharing your campaign:<ol><li style="box-sizing:inherit">Personalize Your Story: Share why this cause is important to you. Personal stories resonate more with potential donors.</li><li style="box-sizing:inherit">Use Social Media: Post about your campaign on Facebook, Instagram, X, and LinkedIn. Include the campaign link and a compelling image or video.</li><li style="box-sizing:inherit">Email Your Network: Send a personal email to friends, family, and colleagues explaining why you are fundraising and how they can help.</li><li style="box-sizing:inherit">Regular Updates: Keep your supporters informed with updates on your progress and any milestones you reach. This keeps them engaged and more likely to share your campaign.</li></ol> Kearstyn Shawbflsincorporated@gmail.com

BFLS Incorporated