Arthrogryposis Multiplex Congenita Support Inc.

### Context Profile for Arthrogryposis Multiplex Congenita Support Inc. (AMCSI)

1. **Organization Mission & Cause**:
   - **Mission**: AMCSI is dedicated to providing support, resources, and community for individuals and families affected by Arthrogryposis Multiplex Congenita (AMC). Their goal is to enhance the quality of life for those impacted by AMC through education, advocacy, and the promotion of awareness.
   - **Cause**: The organization aims to empower families, improve access to resources, and foster connections among individuals with AMC, ensuring they have the support needed to thrive.

2. **Type of Activities**:
   - **Events**: AMCSI hosts an annual conference that includes workshops, networking opportunities, and educational sessions for families and individuals affected by AMC.
   - **Fundraising Campaigns**: Membership drives and grant funding initiatives are key activities, with membership fees contributing to community grants.
   - **Community Programs**: They provide resources, educational materials, and support networks for families dealing with AMC.

3. **Tone of Voice**:
   - The tone of the website and communications is **friendly**, **supportive**, and **informative**. The language is accessible and encourages community engagement, reflecting a compassionate understanding of the challenges faced by those with AMC.

4. **Emoji Usage**:
   - Emojis are used sparingly in communications, primarily to enhance engagement in event reminders (e.g., 📅 for dates, 📍 for locations). This usage adds a casual and friendly touch to the messages without overwhelming the content.

5. **Key Facts**:
   - **Founding Info**: The specific founding date is not mentioned on the website, but AMCSI has established itself as a vital resource for AMC support.
   - **Scale**: The organization has a modest scale, with a focus on community engagement rather than large-scale operations.
   - **Impact Metrics**: While specific metrics are not detailed, the organization emphasizes the importance of community grants funded through membership contributions.
   - **Volunteer Info**: Information about volunteer opportunities is not explicitly mentioned, but the organization likely relies on community involvement for events and support.

6. **Writing Guidelines**:
   - **Style**: Use a conversational and supportive tone that reflects empathy and understanding. Avoid jargon and ensure clarity in communication.
   - **Structure**: Keep sentences concise and paragraphs short to enhance readability. Use bullet points or lists where appropriate to convey information clearly.
   - **Engagement**: Personalize communications by addressing recipients by name and using inclusive language that fosters a sense of community.
   - **Call to Action**: Clearly outline steps for involvement, whether it’s joining as a member, attending events, or contributing to fundraising efforts.

This context profile provides a comprehensive understanding of AMCSI, enabling AI assistants to generate personalized and relevant content that aligns with the organization's mission and values.

Early Bird - Member Adult (18&up) with AMC

Early Bird - Member Adult (18&up)

Early Bird - Member Child (age 1-17) with AMC

Early Bird - Member Child (age 1-17)

Early Bird - Member Child (under 1yo) with AMC

Early Bird - Member Child (under 1 year old)

Sponsor A Registration

Hello <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name <span contenteditable="false" data-custom-variable="{{lastname}}" fr-original-class="fr-deletable styled-tag-chip " style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">Last name, Thank you for registering for the 18th Annual AMCSI Conference. Please print or screenshot your QR codes from your ETicket located in your email for each member of your party. Name Tag must be worn at ALL times throughout the event.  Only registered attendees are allowed in conference rooms or to participate in ANY conference event, including children's programming, painting, prom, dinner.  See you in Columbus!  Hotel:   The Hilton Columbus at Easton  3900 Chagrin Dr, Columbus, OH 43219 (614) 414-5000 Please use the following link to book your hotel room: <a href="https://www.hilton.com/en/attend-my-event/cmhchhf-amcsi-3cf26007-dc7e-4efb-8dc4-65c0e2aa0026/">Hotel Pass Key</a> We have a room block reserved at Hilton Columbus at Easton for July 4, 2023 through July 9, 2023Hotel Rate $149 per night plus taxes and fees. Complimentary self-parking.  Rooms & Rates<ul><li>1 King Bed W/sleeper Sofa and Walkin Shower - $149.00</li><li>2 Queen Beds with Walkin Shower - $149.00</li><li>1 Kng Exe Lvl Mobility/hearing Access Rollin Shower - $149.00</li><li>1 King Bed, Hear/mob Access W/ Rollin Shower - $149.00</li><li>1 King Bed Hearing Access W/walkin Shower - $149.00</li><li>1 King Mobility Accessible W/bathtub - $149.00</li><li>1 King Bed Hearing Accessible W/bathtub - $149.00</li></ul> <span fr-original-class="fr-emoticon fr-deletable fr-emoticon-img" style="background:url("");font-weight:400;font-family:"Apple Color Emoji", "Segoe UI Emoji", NotoColorEmoji, "Segoe UI Symbol", "Android Emoji", EmojiSymbols;height:1em;width:1em;min-height:20px;min-width:20px;vertical-align:middle">  If you would like to assist our planning team with purchasing children's programming items, please check out our <a href="https://www.amazon.com/hz/wishlist/ls/3SI15XK1K5I6A?ref_=wl_share" target="_blank">Amazon Wish List.</a> <span fr-original-class="fr-emoticon fr-deletable fr-emoticon-img" style="background:url("");font-weight:400;font-family:"Apple Color Emoji", "Segoe UI Emoji", NotoColorEmoji, "Segoe UI Symbol", "Android Emoji", EmojiSymbols;height:1em;width:1em;min-height:20px;min-width:20px;vertical-align:middle">  If you would like to become a conference sponsor, reserve a spot to advertise your business, or send a note of encouragement to your AMCer please click <a href="https://www.amcsupport.org/conference-2023-ads" target="_blank">here.</a> Kind regards. Conference Planning Team <a href="mailto:amcOhio23@gmail.com">amcOhio23@gmail.com</a> <hr /> LIABILITY WAIVER  All persons participating in the 2023 AMCSI Conference at the Hilton Columbus at Easton (hereinafter referred to as “Event”) held on July 5 - July 8, 2023 are required to read, agree to, and sign this waiver before participating.  I hereby release and forever discharge Arthrogryposis Multiplex Congenita Support, Inc., its Board of Directors, and any person working jointly and severally, volunteers, directors, officers, administrators, agents, and assigns (hereinafter referred to as “the Releasees”) from all liability for any and all claims or causes of action of any kind or nature whatsoever and particularly on account of any injuries, both to person and property, which may result from or develop in the future as a result of my participation in the Event.  I further agree that if, despite this Release and Waiver of Liability I or any person on my behalf makes a claim against the Releasees, I will indemnify, save and hold harmless the Releasees from any monetary losses including, but not limited to, legal fees and litigation costs. This release is binding on my heirs, executors, assigns, and administrators.  The undersigned is aware of the risks of participation in the Event. The undersigned assumes all risks. The risks include those foreseen and unforeseen, known and unknown. We may also share or disclose your data to comply with a court order or other legal obligation, to enforce the Site terms of use, and to protect the rights, property or safety of our users and other third parties.  We may disclose data to government or law enforcement officials or private parties as we determine, in our sole and absolute discretion, is necessary or appropriate to respond to claims or to comply with legal processes, to comply with laws, regulations or ordinances or to prevent or stop illegal, unethical or actionable activity. If a minor child accompanies me and participates in the Event, I shall be responsible for supervising such minor child (or children). I agree to indemnify the Releasees from and against any claims for damages or injuries (to the child or third parties) to the extent such claims arise from or are related to my failure to exercise due care in supervision.  I acknowledge that photographs may be taken of persons taking part in the Event by AMCSI and waive any rights of compensation or ownership there to. I hereby authorize and consent to either or both of the Releasees, making make use of any Event-related photographs in which I and/or my minor child or children may be included for purposes of news reporting and/or public relations and, further, authorize either or both of the Releasees to publish and/or re-publish such photograph or photographs in the fund raising materials and literature in connection with the Event and other fund raising events.  I hereby declare that I:• Have read, understood, and voluntarily accept the terms and conditions of this document.• Recognize my right to seek legal counsel before submitting my registration form. • Am waiving legal rights and in knowing this, I agree to it of my own free will. I am aware that my agreement to this Waiver and Release of Liability is in effect once I submit this registration form. Please submit your full name on registration form, if you accept.  <hr /> PHOTO RELEASE 1. Video/audio capture of AMCSI sessions and activities is strictly prohibited without express written permission from BOTH: 1.) the session presenter/s, person/s, and 2.) AMCSI.  AMCSI reserves all video/audio taping and photography rights at conferences and events. No video or audio taping is permitted in session rooms. 2. Amateur video/audio capture and still photographs are permitted of ambient environments, informal exchanges, and sessions and activities not organized by AMCSI, outside of AMCSI session rooms, provided that appropriate permissions have been granted by the parties affected. AMCSI assumes no liability for copyright and/or intellectual property violations that may occur as a result. 3. Under no circumstances may any length or quality of video/audio capture of AMCSI sessions be used for marketing, advertising, or commercial purposes without express written permission from BOTH: 1.) the session presenter/s, and 2.) AMCSI. 4. Private recording is not allowed without permission. The Board of Directors are authorized to halt the creation of unauthorized recordings. 5. Any costs associated with the creation of an audio/video record must be incurred by those wishing to create the audio/video recording unless funding is specifically authorized by the Board of Directors of AMCSI. 6. Audio/video material created at an AMCSI event shall not be used by the recorders for financial gain without permission from the Board of Directors of AMCSI. 7. AMCSI will be provided with a copy of each instance of audio/video recording created at an AMCSI event, within 30 days of the creation of the recording. 8. Any costs associated with the creation of an audio/video record must be incurred by those wishing to create the audio/video recording unless funding is specifically authorized by AMCSI. 9. AMCSI is authorized to reuse the copy in a non-profit manner that is consistent with AMCSI’s Mission and Vision. 10. Requests for audio/video capture of AMCSI Events may be made by emailing <a href="mailto:bod@amcsupport.org">bod@amcsupport.org</a> <hr /> CODE OF CONDUCT  We are committed to providing a friendly, safe and welcoming environment for all, regardless of gender, sexual orientation, disability, ethnicity, or religion. This code of conduct outlines our expectations for participant behavior as well as the consequences for unacceptable behavior. We invite all sponsors, volunteers, speakers, attendees, media, exhibitors, and other participants to help us make the AMCSI Conference a safe and positive experience for everyone. All event participants must abide by this code of conduct at all conference venues and conference-related social events. All decisions about appropriate or inappropriate behavior are at the sole discretion of the event organizers AMCSI Board of Directors & Planning Team. EXPECTED BEHAVIOR  •    Be considerate and respectful.•    Refrain from demeaning, discriminatory, or harassing behavior and speech.•    Be mindful of your surroundings and of your fellow attendees. Alert conference organizers if you notice a dangerous situation or someone in distress. UNACCEPTABLE BEHAVIOR •    Unacceptable behavior includes but is not limited to intimidating, harassing, abusive, discriminatory, derogatory, demeaning behavior, inappropriate physical contact, and unwelcomed sexual conduct by any attendees of AMCSI and related events like the after-hours networking parties.   •    Harassment includes offensive verbal comments related to gender, sexual orientation, race, religion, or disability; inappropriate use of nudity and/or deliberate intimidation, stalking or following; harassing photography or recording in an aggressive manner; disruption of talks or other events. •    Inappropriate Clothing for Family Friendly Event•    Verbal, Written or Physical Abuse (pushing, shoving, or use of any physical force), threats, whatsoever against any person, which in any way creates a disturbance that is disruptive or dangerous. •    Possession of any item that can be used as a weapon and may cause danger to others.   •    Any lewd behavior or offensive language, including but not limited to sexually explicit language, materials or conduct, profanity, obscene gestures, racial, religious, gender, or ethnic slurs.•    Drinking alcohol outside designated areas. Please drink responsibly.•    Possession or use of any illegal substance. AMCSI does not tolerate the use or abuse of illegal substances anywhere in the venue.•    Smoking in non-designated areas.•    Assembling for the purpose of, or resulting in, disturbing the peace, or committing any unlawful act.•    Failure to obey any rules or regulations of the Venue. CONSEQUENCES OF UNACCEPTABLE BEHAVIOR•    Unacceptable behavior will not be tolerated.•    Anyone asked to stop unacceptable behavior is expected to comply immediately.•    If a participant engages in unacceptable behavior, the conference organizers may take any action they deem appropriate, up to and including expulsion from the conference without warning or refund. WHAT TO DO IF YOU WITNESS OR ARE A VICTIM OF UNACCEPTABLE BEHAVIOR•    If you are subjected to unacceptable behavior, notice that someone else is being subjected to unacceptable behavior, or have any other concerns during the event, please notify a member of AMCSI Board of Directors and Planning Team as soon as possible. All reports will remain completely confidential. The AMCSI Board of Directors and Planning Team will be available to help participants contact hotel venue security and/or local law enforcement as deemed necessary, or to otherwise assist victims in reporting unlawful unacceptable behavior. If you have any questions, please contact the planning team at 1-805-55-AMCSI (1-805-552-6274)<a href="mailto:bod@amcsupport.org">bod@amcsupport.org</a>

Arthrogryposis Multiplex Congenita Support Inc.

18th Annual AMCSI Conference

Columbus

Early Bird - Member Adult (18&up) with AMC

US$110

Early Bird - Member Adult (18&up)

US$121

Early Bird - Member Child (age 1-17) with AMC

US$88

Early Bird - Member Child (age 1-17)

US$99

Early Bird - Member Child (under 1yo) with AMC

US$30

Early Bird - Member Child (under 1 year old)

US$30

Sponsor A Registration

US$120