We’re thrilled about our 5th Annual Walkathon! Join us in achieving our $35,000 goal to assist VOGM Warriors in accessing crucial brain surgery from specialized experts. The Vein of Galen Malformation Support Network is dedicated to raising awareness about VOGM, a rare brain AVM. With October being AVM Awareness Month, it’s the ideal moment to unite, even from a distance, and

TO MAKE A RARE CONDITION FEEL LESS RARE!!

OUR GOAL FOR THIS FUNDRAISING CAMPAIGN:

Deliver Vital Medical Assistance: Our primary goal is to help provide access to life-saving medical care to VOGM children. Your contributions will directly contribute to their well-being and health prospects.

Foster a Supportive Network: We have established a robust care network that offers families invaluable resources, guidance, and a sense of community as they navigate the complexities of this journey.

Drive Research and Progress: Your donation helps support research initiatives that drive advancements for VOGM families. This research leads to improved treatments and better outcomes, including in-utero embolization that lowers the likelihood of needing risky surgery at birth! 

Join us in achieving these goals and making an impact in the lives of VOGM children and their families. Every donation makes a difference in a child’s life.

Please join our international movement during the last week of October! Turn those walks around your neighborhood, a hike in the mountains, Halloween fun, and other outdoor activities into a way to raise awareness and money for our mission! Get started now by joining a team or a VOGM child and registering for VOGM Walk Your Way!!!

Why does your participation matter?

Vein of Galen malformation is a rare and complex condition that affects our youngest warriors. But together, we can make a difference. With every step we take, we're raising awareness, funds, and spirits. Your involvement in this campaign shows these brave kids and their families that they're not alone – we're here, side by side, walking to create a future full of promise.

Event Details:

• Date: October 25th - 31st, 2024

• Location: Anywhere in the world!

• Time: Walk at your convenience

• Objective: Raise funds for kids with VOGM and promote awareness

HOW TO REGISTER 

1- Register by clicking the “SIGN UP NOW!” button below! 

2- Pay the registration fee and find your team, or you can start YOUR OWN TEAM.

3- You will then immediately be able to create your fundraising page. You can customize your fundraising page with photos and a personal message or story on why you are doing this walk. 

4. Keep an eye out for a reminder email with your race day bib, and further instructions prior to the walk!

Spread the Word: Utilize the power of social media, emails, and good old-fashioned conversations to spread awareness about our campaign. Share updates on your training, your fundraising progress, and the stories of the children you're walking for.

Fundraising: Walk, run, or roll whenever your schedule allows during that week. Your steps count, and so do your dollars. Encourage your network to donate to your fundraising page. Every contribution, no matter the size, makes an impact. Remember, the more you raise, the more children we can support. 

Walk with Pride: On the designated day, put on your walking shoes and hit the pavement with a heart full of purpose. You're not just walking – you're showing solidarity, empathy, and love for these young fighters. Capture your walk-through photos and videos to share with the community and don’t forget to tag @vogmsupportnetwork and #vogmwalkyourway #veinofgalen #vogm

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